The term scleroderma refers to a group of diseases that involve the hardening and tightening of skin and connective tissues. There are different types, some affecting only areas of the skin and others damaging blood vessels, internal organs, digestive tract, muscles, and joints. Scleroderma is usually classified as an autoimmune rheumatic disease, and is neither contagious nor cancerous. It affects four times more women than men, most commonly between the ages of 30 and 50. While there is no definitive cure, medical treatment can alleviate symptoms and improve a patient’s quality of life.
Scleroderma comes from the Greek words “sclero” meaning hard, and “derma” meaning skin, and is characterized by inflammation and stiffening of the skin. This is due to excessive collagen production. Collagen, a protein normally present in the skin, provides needed structural support in proper amounts.
Localized scleroderma is relatively mild, and it usually affects only the skin, not the internal organs. Systemic scleroderma (also known as systemic sclerosis), can also cause the connective tissue in other parts of the body—including the esophagus, gastrointestinal tract, lungs, kidneys, heart, blood vessels, muscles, and joints—to become fibrous and inflexible, preventing them from functioning properly. It is estimated that about 300,000 Americans have scleroderma, with one-third exhibiting the systemic form.
The two forms of systemic scleroderma are diffuse scleroderma, which can occur quickly and involve large areas of skin, and limited scleroderma, which develops slower and affects smaller patches of skin. Limited scleroderma is sometimes called CREST syndrome, an acronym for its common features: calcinosis (insoluble calcium deposits in the skin and subcutaneous tissues); Raynaud phenomenon (decreased blood flow in the fingers and toes); esophageal dysfunction, sclerodactyly ( hardening of the skin of the hand causes the fingers to curl inward); and telangiectasia (spider veins).
Although it is not known exactly what triggers abnormal collagen production, the body’s immune system appears to play a role; in 15 to 20 percent of diagnosed cases, scleroderma patients also exhibit symptoms of another autoimmune disease, such as rheumatoid arthritis, lupus, or Sjögren’s syndrome.
There is no single diagnostic test for scleroderma, and it can be difficult to determine which type of the disease is responsible for a patient’s symptoms. A rheumatologist will often be consulted and an antibody nuclear (ANA) test may be ordered, but because the body develops antibodies for various reasons, that test alone cannot diagnosis scleroderma. Additional tests may determine if the lungs, heart, and digestive system are functioning well and whether bones or soft tissues are being affected.
There is no known medication that can halt the overproduction of collagen—the root of the condition. Treatment instead focuses on controlling symptoms and preventing complications, including steroid creams or pills to reduce swelling and loosen tightened skin, and medications to treat gastrointestinal distress. Drugs that dilate blood vessels may help prevent lung and kidney issues, and immune-suppressants are sometimes included in a treatment regimen. Studies are now being conducted on innovative, small molecule therapies which some experts expect to make a significant mark in treatment of scleroderma by the end of the decade.
Agencies & Associations
1074 Dermatology Foundation
1560 Sherman Avenue
Evanston, IL 60201-4808
847-328-2256
Fax: 847-328-0509
dfgen@dermatologyfoundation.org
www.dermatologyfoundation.org
Raises funds for the control of skin diseases through research, improved education and better patient care. Supports basic clinical investigations.
Janet A. Fairley, MD, President
Elizabeth I. McBurney, MD, Chair
1075 International Scleroderma Network
7455 France Ave.
Edina, MN 55435-4702
952-831-3091
800-564-7099
support@sclero.org
www.sclero.org
Provides medical information, public awareness, and support services for people affected by scleroderma and related illnesses. The network also supports international peer-reviewed research on scleroderma.
1076 International Society of Dermatology
85 High Street
Waldorf, MD 20602
386-437-4405
Fax: 386-437-4427
info@intsocderm.org
www.intsocderm.org
Promotes interest, education and research in dermatology.
George T. Reizner, MD, President
Marcia Ramos-e-Silva, Executive Vice President
1077 National Institute of Arthritis and Musculoskeletal and Skin Diseases
1 AMS Circle
Bethesda, MD 20892
301-495-4484
877-226-4267
Fax: 301-718-6366
TTY: 301-565-2966
TDD: 301-565-2966
niamsinfo@mail.nih.gov
www.niams.nih.gov
The mission of the NIAMS is to support research into the causes, treatment, and prevention of arthritis and musculoskeletal and skin diseases, the training of basic and clinical scientists to carry out this research, and the dissemination of information on research progress in these diseases.
Lindsey Criswell, MD, Director
Foundations & Research Centers
1078 American Academy of Dermatology
PO Box 1968
Des Plaines, IL 60017
847-240-1280
888-462-3376
Fax: 847-240-1859
www.aad.org
Dedicated to achieving high quality dermatologic care for everyone which encompasses: responsiveness, unification and representation of the specialty, and excellence in patient care, education and research.
1079 American College of Rheumatology
2200 Lake Boulevard NE
Atlanta, GA 30319
404-633-3777
education@rheumatology.org
www.rheumatology.org
Committed to improving the care of patients with rheumatic disease and advancing the rheumatology subspecialty. Offers clinical support for rheumatic related diseases including arthritis, juvenile arthritis, osteoroporosis, lyme disease, reproductive health, scleroderma, and vasculitis.
S. Louis Bridges, Foundation President
1080 Johns Hopkins Scleroderma Center
5200 Eastern Avenue
Baltimore, MD 21224
www.hopkinsscleroderma.org
The mission of The Johns Hopkins Scleroderma Center is to provide excellent clinical care while seeking to better understand scleroderma.
Laura Hummers, MD, ScM, Co-Director
Ami Shah, MD, MHS, Co-Director
1081 National Institute of Arthritis & Musculoskeletal & Skin Diseases
1 AMS Circle
Bethesda, MD 20892-3675
301-495-4484
877-226-4267
Fax: 301-718-6366
TTY: 301-565-2966
niamsinfo@mail.nih.gov
www.niams.nih.gov
The mission of the NIAMS is to support research into the causes, treatment, and prevention of arthritis and musculoskeletal and skin diseases, the training of basic and clinical scientists to carry out this research, and the dissemination of information on research progress in these diseases.
Lindsey Criswell, MD, Director
1082 Scleroderma Foundation
300 Rosewood Dr.
Danvers, MA 01923
978-463-5843
800-722-4673
Fax: 978-777-1313
sfinfo@scleroderma.org
www.scleroderma.org
Dedicated to helping patients and their families cope with scleroderma through mutual support programs, peer counseling, physician referrals and educational information; to promote public awareness and education through patient and health professional seminars, literature and publicity campaigns; and to stimulate and support research to improve treatment and ultimately find the cause of and cure for scleroderma and related diseases.
Robert J. Riggs, Chief Executive Officer
Michael B. Hyde, Chief Operating & Financial Officer
1083 Scleroderma Research Foundation
220 Montgomery St.
San Francisco, CA 94104
415-834-9444
info@srfcure.org
srfcure.org
The SRF is America’s largest nonprofit investor in scleroderma research is committed to the principle that the best way to help scleroderma patients is to fund the most promising research aimed at improved therapies and a cure.
Joanne Gold, Executive Director
1084 World Scleroderma Foundation
Elisabethenstrasse 3, 4051
Basel, Switzerland,
worldsclerodermafoundation@gmail.com
worldsclerofound.org
The World Scleroderma Foundation is dedicated to initiating and supporting research in scleroderma in all its aspects in all regions of the world. It is committed to improving the quality of life for scleroderma patients and their families. Offers project grants, expert advisory panels and a platform for educational information.
Marco Matucci, MD, President
Daniel E. Furst, MD, Vice-President & Treasurer
California
1085 Scleroderma Foundation: Southern California Chapter
8929 S. Sepulveda Blvd.
Los Angeles, CA 90045-3604
424-227-6475
SOCALchapter@scleroderma.org
www.scleroderma.org
Dedicated to helping patients and their families cope with scleroderma through mutual support programs, peer counselling, physician referrals and education.
Andrew Emmett, Executive Director
Colorado
1086 Scleroderma Foundation: Rockey Mountain Chapter
5403 E. Evans Ave.
Denver, CO 80222
303-806-6686
COchapter@scleroderma.org
www.scleroderma.org
Dedicated to helping patients and their families cope with scleroderma through mutual support programs, peer counselling, physician referrals and education.
Maria Dastur, Executive Director
Delaware
1087 Scleroderma Foundation: Deleware Valley Chapter
385 Kings Hwy. N
Cherry Hill, NJ 08034
856-779-7225
866-675-5545
DVchapter@scleroderma.org
www.scleroderma.org
Dedicated to helping patients and their families cope with scleroderma through mutual support programs, peer counselling, physician referrals and education. This chapter covers Delaware, Eastern Pennsylvania, and Southern New Jersey.
Katie Higgins, President
District of Columbia
1088 Scleroderma Foundation: Greater Washington DC Chapter
5004 Domain Place
Alexandria, VA 22311
703-282-3016
DCchapter@scleroderma.org
www.scleroderma.org
Dedicated to helping patients and their families cope with scleroderma through mutual support programs, peer counselling, physician referrals and education.
Sharon P. Fine, President
Florida
1089 Scleroderma Foundation: Southeast Florida Chapter
3930 Oaks Clubhouse Dr.
Pompano Beach, FL 33069
954-798-1854
frobin@scleroderma.org
www.scleroderma.org
Dedicated to helping patients and their families cope with scleroderma through mutual support programs, peer counselling, physician referrals and education.
Ferne Robin, Executive Director
Georgia
1090 Scleroderma Foundation: Georgia Chapter
PO Box 522
Lilburn, GA 30048
770-925-7037
gachapter@scleroderma.org
www.scleroderma.org
Dedicated to helping patients and their families cope with scleroderma through mutual support programs, peer counselling, physician referrals and education.
Doreen Towhey, Co-President
Peggy Levengood, Co-President
Illinois
1091 Scleroderma Foundation: Greater Chicago Chapter
125 S. Clark St.
Chicago, IL 60603
312-660-1131
GCchapter@scleroderma.org
www.scleroderma.org
Dedicated to helping patients and their families cope with scleroderma through mutual support programs, peer counselling, physician referrals and education. This chapter covers Illinois, Indiana, and Wisconsin.
Stephanie Summers Gresh, Executive Director
Melissa Kuhr, Marketing & Fundraising Manager
Massachusetts
1092 Scleroderma Foundation: New England Chapter
462 Boston St.
Topsfield, MA 01983
978-887-0658
Fax: 978-887-0659
admin@sfnewengland.org
www.scleroderma.org
Dedicated to helping patients and their families cope with scleroderma through mutual support programs, peer counselling, physician referrals and education. This chapter covers Maine, Massachusetts, New Hampshire, Rhode Island, and Vermont.
Don Legere, President
Michigan
1093 Scleroderma Foundation: Michigan Chapter
23999 Telegraph Rd.
Southfield, MI 48033
248-595-8526
MIchapter@scleroderma.org
www.scleroderma.org
Dedicated to helping patients and their families cope with scleroderma through mutual support programs, peer counselling, physician referrals and education.
Laura Dyas, Executive Director
Minnesota
1094 Scleroderma Foundation: Minnesota Chapter
PO Box 240244
Apple Valley, MN 55124
877-794-0347
MNChapter@scleroderma.org
www.scleroderma.org
Dedicated to helping patients and their families cope with scleroderma through mutual support programs, peer counselling, physician referrals and education.
Kriss Mass, President
Missouri
1095 Scleroderma Foundation: Missouri Chapter
PO Box 1216
Ballwin, MO 63022
636-527-3599
MOchapter@scleroderma.org
www.scleroderma.org
Dedicated to helping patients and their families cope with scleroderma through mutual support programs, peer counselling, physician referrals and education.
Rhonda Costa, President
Nebraska
1096 Scleroderma Foundation: Heartland Chapter
PO Box 747
Gretna, NE 68028
515-661-8089
HeartlandChapter@scleroderma.org
www.scleroderma.org
Dedicated to helping patients and their families cope with scleroderma through mutual support programs, peer counselling, physician referrals and education. This chapter covers Iowa, Nebraska, and South Dakota.
Lacey Bodnar, President
New York
1097 Scleroderma Foundation: Tri-State Chapter
59 Front St.
Binghamton, NY 13905
607-723-2239
800-867-0885
Fax: 607-723-2039
sdtristate@sclerodermatristate.org
www.scleroderma.org
Dedicated to helping patients and their families cope with scleroderma through mutual support programs, peer counselling, physician referrals and education. This chapter covers Connecticut, New York and Northern New Jersey.
Bruce R. Cowan, Executive Director
Ohio
1098 Scleroderma Foundation: Ohio Chapter
PO Box 107
Pataskala, OH 43062
614-323-8038
tfellows@scleroderma.org
www.scleroderma.org
Dedicated to helping patients and their families cope with scleroderma through mutual support programs, peer counselling, physician referrals and education.
Lucille Miller, President
Oklahoma
1099 Scleroderma Foundation: Oklahoma Chapter
800-722-4673
SFinfo@scleroderma.org
www.scleroderma.org
Dedicated to helping patients and their families cope with scleroderma through mutual support programs, peer counselling, physician referrals and education.
Donna Roberts, Vice-President
Oregon
1100 Scleroderma Foundation: Oregon Chapter
PO Box 19296
Portland, OR 97280-0296
503-245-4588
ORchapter@scleroderma.org
www.scleroderma.org
Dedicated to helping patients and their families cope with scleroderma through mutual support programs, peer counselling, physician referrals and education.
Christina Fidalgo, President
South Carolina
1101 Scleroderma Foundation: South Carolina Chapter
713-D E. Greenville St.
Anderson, SC 29621
864-617-0237
SCchapter@scleroderma.org
www.scleroderma.org
Dedicated to helping patients and their families cope with scleroderma through mutual support programs, peer counselling, physician referrals and education.
Susan Melvin, President
Tennessee
1102 Scleroderma Foundation: Texas Bluebonnet Chapter
110 Cypress Station Dr.
Houston, TX 77090
281-880-4992
281-880-4996
TXchapter@scleroderma.org
www.scleroderma.org
Dedicated to helping patients and their families cope with scleroderma through mutual support programs, peer counselling, physician referrals and education.
Diane Lee, President
Washington
1103 Scleroderma Foundation: Northwest Chapter
PO Box 730
Clear Lake, WA 98235
206-285-9822
northwest@scleroderma.org
www.scleroderma.org
Dedicated to helping patients and their families cope with scleroderma through mutual support programs, peer counselling, physician referrals and education. This chapter covers Washington State and Idaho.
Krista Chambers, President
Support Groups & Hotlines
1104 American Academy of Dermatology
PO Box 1968
Des Plaines, IL 60017
847-240-1280
888-462-3376
Fax: 847-240-1859
www.aad.org
Dedicated to achieving high quality dermatologic care for everyone which encompasses: responsiveness, unification and representation of the specialty, and excellence in patient care, education and research.
1105 More than Scleroderma
Boehringer Ingelheim Pharmaceuticals, Inc.
900 Ridgebury Road
Ridgefield, CT 06877-0368
800-243-0127
TTY: 800-459-9906
www.morethanscleroderma.com/us
Offers support and guidance for people with scleroderma and their families by providing information and resources all in one place.
1106 Scleroderma Foundation
300 Rosewood Dr.
Danvers, MA 01923
978-463-5843
800-722-4673
Fax: 978-777-1313
sfinfo@scleroderma.org
www.scleroderma.org
Dedicated to helping patients and their families cope with scleroderma through mutual support programs, peer counseling, physician referrals and educational information; to promote public awareness and education through patient and health professional seminars, literature and publicity campaigns; and to stimulate and support research to improve treatment and ultimately find the cause of and cure for scleroderma and related diseases.
Robert J. Riggs, Chief Executive Officer
Michael B. Hyde, Chief Operating & Financial Officer
California
1107 Scleroderma Foundation: Southern California Chapter
8929 S. Sepulveda Blvd.
Los Angeles, CA 90045-3604
424-227-6475
SOCALchapter@scleroderma.org
www.scleroderma.org
Dedicated to helping patients and their families cope with scleroderma through mutual support programs, peer counselling, physician referrals and education.
Andrew Emmett, Executive Director
Colorado
1108 Scleroderma Foundation: Rockey Mountain Chapter
5403 E. Evans Ave.
Denver, CO 80222
303-806-6686
COchapter@scleroderma.org
www.scleroderma.org
Dedicated to helping patients and their families cope with scleroderma through mutual support programs, peer counselling, physician referrals and education.
Maria Dastur, Executive Director
Delaware
1109 Scleroderma Foundation: Deleware Valley Chapter
385 Kings Hwy. N
Cherry Hill, NJ 08034
856-779-7225
866-675-5545
DVchapter@scleroderma.org
www.scleroderma.org
Dedicated to helping patients and their families cope with scleroderma through mutual support programs, peer counselling, physician referrals and education. This chapter covers Delaware, Eastern Pennsylvania, and Southern New Jersey.
Katie Higgins, President
District of Columbia
1110 Scleroderma Foundation: Greater Washington DC Chapter
5004 Domain Place
Alexandria, VA 22311
703-282-3016
DCchapter@scleroderma.org
www.scleroderma.org
Dedicated to helping patients and their families cope with scleroderma through mutual support programs, peer counselling, physician referrals and education.
Sharon P. Fine, President
Florida
1111 Scleroderma Foundation: Southeast Florida Chapter
3930 Oaks Clubhouse Dr.
Pompano Beach, FL 33069
954-798-1854
frobin@scleroderma.org
www.scleroderma.org
Dedicated to helping patients and their families cope with scleroderma through mutual support programs, peer counselling, physician referrals and education.
Ferne Robin, Executive Director
Georgia
1112 Scleroderma Foundation: Georgia Chapter
PO Box 522
Lilburn, GA 30048
770-925-7037
gachapter@scleroderma.org
www.scleroderma.org
Dedicated to helping patients and their families cope with scleroderma through mutual support programs, peer counselling, physician referrals and education.
Doreen Towhey, Co-President
Peggy Levengood, Co-President
Illinois
1113 Scleroderma Foundation: Greater Chicago Chapter
125 S. Clark St.
Chicago, IL 60603
312-660-1131
GCchapter@scleroderma.org
www.scleroderma.org
Dedicated to helping patients and their families cope with scleroderma through mutual support programs, peer counselling, physician referrals and education. This chapter covers Illinois, Indiana, and Wisconsin.
Stephanie Summers Gresh, Executive Director
Melissa Kuhr, Marketing & Fundraising Manager
Massachusetts
1114 Scleroderma Foundation: New England Chapter
462 Boston St.
Topsfield, MA 01983
978-887-0658
Fax: 978-887-0659
admin@sfnewengland.org
www.scleroderma.org
Dedicated to helping patients and their families cope with scleroderma through mutual support programs, peer counselling, physician referrals and education. This chapter covers Maine, Massachusetts, New Hampshire, Rhode Island, and Vermont.
Don Legere, President
Michigan
1115 Scleroderma Foundation: Michigan Chapter
23999 Telegraph Rd.
Southfield, MI 48033
248-595-8526
MIchapter@scleroderma.org
www.scleroderma.org
Dedicated to helping patients and their families cope with scleroderma through mutual support programs, peer counselling, physician referrals and education.
Laura Dyas, Executive Director
Minnesota
1116 Scleroderma Foundation: Minnesota Chapter
PO Box 240244
Apple Valley, MN 55124
877-794-0347
MNChapter@scleroderma.org
www.scleroderma.org
Dedicated to helping patients and their families cope with scleroderma through mutual support programs, peer counselling, physician referrals and education.
Kriss Mass, President
Missouri
1117 Scleroderma Foundation: Missouri Chapter
PO Box 1216
Ballwin, MO 63022
636-527-3599
MOchapter@scleroderma.org
www.scleroderma.org
Dedicated to helping patients and their families cope with scleroderma through mutual support programs, peer counselling, physician referrals and education.
Rhonda Costa, President
Nebraska
1118 Scleroderma Foundation: Heartland Chapter
PO Box 747
Gretna, NE 68028
515-661-8089
HeartlandChapter@scleroderma.org
www.scleroderma.org
Dedicated to helping patients and their families cope with scleroderma through mutual support programs, peer counselling, physician referrals and education. This chapter covers Iowa, Nebraska, and South Dakota.
Lacey Bodnar, President
New York
1119 Scleroderma Foundation: Tri-State Chapter
59 Front St.
Binghamton, NY 13905
607-723-2239
800-867-0885
Fax: 607-723-2039
sdtristate@sclerodermatristate.org
www.scleroderma.org
Dedicated to helping patients and their families cope with scleroderma through mutual support programs, peer counselling, physician referrals and education. This chapter covers Connecticut, New York and Northern New Jersey.
Bruce R. Cowan, Executive Director
Ohio
1120 Scleroderma Foundation: Ohio Chapter
PO Box 107
Pataskala, OH 43062
614-323-8038
tfellows@scleroderma.org
www.scleroderma.org
Dedicated to helping patients and their families cope with scleroderma through mutual support programs, peer counselling, physician referrals and education.
Lucille Miller, President
Oklahoma
1121 Scleroderma Foundation: Oklahoma Chapter
800-722-4673
SFinfo@scleroderma.org
www.scleroderma.org
Dedicated to helping patients and their families cope with scleroderma through mutual support programs, peer counselling, physician referrals and education.
Donna Roberts, Vice-President
Oregon
1122 Scleroderma Foundation: Oregon Chapter
PO Box 19296
Portland, OR 97280-0296
503-245-4588
ORchapter@scleroderma.org
www.scleroderma.org
Dedicated to helping patients and their families cope with scleroderma through mutual support programs, peer counselling, physician referrals and education.
Christina Fidalgo, President
South Carolina
1123 Scleroderma Foundation: South Carolina Chapter
713-D E. Greenville St.
Anderson, SC 29621
864-617-0237
SCchapter@scleroderma.org
www.scleroderma.org
Dedicated to helping patients and their families cope with scleroderma through mutual support programs, peer counselling, physician referrals and education.
Susan Melvin, President
Tennessee
1124 Scleroderma Foundation: Texas Bluebonnet Chapter
110 Cypress Station Dr.
Houston, TX 77090
281-880-4992
281-880-4996
TXchapter@scleroderma.org
www.scleroderma.org
Dedicated to helping patients and their families cope with scleroderma through mutual support programs, peer counselling, physician referrals and education.
Diane Lee, President
Washington
1125 Scleroderma Foundation: Northwest Chapter
PO Box 730
Clear Lake, WA 98235
206-285-9822
northwest@scleroderma.org
www.scleroderma.org
Dedicated to helping patients and their families cope with scleroderma through mutual support programs, peer counselling, physician referrals and education. This chapter covers Washington State and Idaho.
Krista Chambers, President
Journals
1126 Journal of Scleroderma and Related Disorders
SAGE Publications
journals.sagepub.com/home/jso
The official independent journal of the World Scleroderma Foundation and EUSTAR. An international, multi-disciplinary, peer-reviewed publication targeted to scientists and clinicians interested in systemic sclerosis, scleroderma, and other related autoimmune and fibrotic diseases.
Marco Matucci-Cerinic, Co-Editor-In-Chief
Masataka Kuwana, Co-Editor-In-Chief
1127 Journal of the American Academy of Dermatology
PO Box 1968
Des Plaines, IL 60017
847-240-1280
888-462-3376
www.jaad.org
The official scientific publication of the American Academy of Dermatology (AAD) aims to satisfy the educational needs of the dermatology community.
Dirk M. Elston, MD, Editor
Jane M. Grant-Kels, MD, Deputy Editor
Digital Resources
1128 Introduction to Scleroderma Video Series
International Scleroderma Network
7455 France Ave.
Edina, MN 55435-4702
952-831-3091
800-564-7099
www.sclero.org
Provides medical information, public awareness, and support for people affected by scleroderma and related illnesses. Series hosted by Isabella Ensz.
1129 Localized Scleroderma Video Series
International Scleroderma Network
7455 France Ave.
Edina, MN 55435-4702
952-831-3091
800-564-7099
www.sclero.org
Provides medical information, public awareness, and support for people affected by scleroderma and related illnesses. Series hosted by Amanda Thorpe.
1130 Medscape
395 Hudson Street
New York, NY 10014
212-301-6700
www.medscape.com
Medscape is a leading online global destination for physicians and healthcare professionals worldwide, offering the latest medical news and expert perspectives; essential point-of-care drug and disease information; and relevant professional education and CME.
Eric Topol, MD, Editor-In-Chief
1131 Systemic Sclerosis Video Series
International Scleroderma Network
7455 France Ave.
Edina, MN 55435-4702
952-831-3091
800-564-7099
www.sclero.org
Provides medical information, public awareness, and support for people affected by scleroderma and related illnesses. Series hosted by Amanda Thorpe.
Web Sites
1132 International Scleroderma Network
7455 France Ave.
Edina, MN 55435-4702
952-831-3091
800-564-7099
support@sclero.org
www.sclero.org
Provides medical information, public awareness, and support services for people affected by scleroderma and related illnesses. The network also supports international peer-reviewed research on scleroderma.
1133 Medscape
395 Hudson Street
New York, NY 10014
212-301-6700
www.medscape.com
Medscape is a leading online global destination for physicians and healthcare professionals worldwide, offering the latest medical news and expert perspectives; essential point-of-care drug and disease information; and relevant professional education and CME.
Eric Topol, MD, Editor-In-Chief
1134 More than Scleroderma
Boehringer Ingelheim Pharmaceuticals, Inc.
900 Ridgebury Road
Ridgefield, CT 06877-0368
800-243-0127
TTY: 800-459-9906
www.morethanscleroderma.com/us
Offers support and guidance for people with scleroderma and their families by providing information and resources all in one place.
1135 National Institute of Arthritis & Musculoskeletal & Skin Diseases
1 AMS Circle
Bethesda, MD 20892-3675
301-495-4484
877-226-4267
Fax: 301-718-6366
TTY: 301-565-2966
niamsinfo@niams.nih.gov
www.niams.nih.gov
The mission of the NIAMS is to support research into the causes, treatment, and prevention of arthritis and musculoskeletal and skin diseases; the training of basic and clinical scientists to carry out this research; and the dissemination of information on research progress in these diseases.
Lindsey Criswell, MD, Director
1136 WebMD
www.webmd.com
Provides credible information, supportive communities, and in-depth reference material about health subjects. A source for original and timely health information as well as material from well known content providers.